hmm lot to upday. Mostly fun things and the places we have been.. I'll save that for another time. Today we had a check-up at PCMC transplant team. They wanted to do another echo and some labs.
Misky was really good for her ECHO. Did ok on the first blood draw.. the 2nd one she wasnt happy she had to do it again! She came home with One bear and 11 stickers, and 5 sugar free suckers. Pays to be happy.
Echo looks the same... labs look the same... she hasnt gained any weight since March.. cant be listed as a 1B until she falls under the 10th% for her age. *6 more weeks not not gaining and she will* for now shes still listed as 2.
They *the transplant team* didnt feel good about admitting her today. Theres many new risks of being healthy sitting in a hospital with ill kids. For now she'll be at home. We'll talk to the on tues day if shes doing well/same then we go in the next week but if something changes then we see them in a week.
Feels like we may have missed a bullet but the bomb is about to drop. Oh I pray I'm wrong... So many things to worry about with this new adventure.
Shes doing well enough to be a hand full in the hospital but is slowly getting sicker. Have a question for heart families. What do you do about church?? They say not to go and risk betting her sick but we need to be refilled spiritually. What are the options? :S
Thanks for keeping up with our slow but wild ride. <3
House Progress - We stopped by our house today and we have walls, windows, electrical, plumbing, insulation and part of the roof!
6 days ago