Wednesday, October 10, 2012

Two little girls.

Mariska keeps me on my toes! When the words. "Hurry mom, come here!" come from Mariska's mouth it always means one of two things. Kamiah is covered in something... or there's blood.. Today Kamiah was Covered in bubble goo.  I cant turn my back for long until something like that happens! Last week she talked me into playing "Tangled" I got to be the wicked mom, haha! Well after I did my mother knows best song and send her to back to her room. *She giggles and asks me to do it 3 times before she'll go" I went to check on her a while later, and I notice there's hair in the bathroom and on the floor. YES she cut her hair again! I really promise I don't just leave scissors around. I cover them in back of draws.. they are now ALL until of the kitchen cabinets. She gave the her self a few nice layers on one side. What to do with this kid... After all she was playing "Tangled" and thats how the show ends with a hair cut! *face palm*

She loves to help cook but even more when I'm not around. Just yesterday also she decided the dog needed something better then just plain old water. Mariska took the last 1/4th of the chocolate milk and a few scoops of Kamiahs formula put it into the blender and mixed it with a spoon before dumping it into the water dish. Took me a few hours to finally learn where the mix ended.

Love this kid! but oh man, we have some crazy days.

 There's an other little girl on facebook I started following last week who just got a new heart! YAY. They posted pictures of her new heart sitting in the ice water taken while they removed her old sick HLHS heart. I thought it was pretty cool to see a new healthy heart so I had her come over and look too.  She say here for almost 20mins just looking at it, saying "oh WOW, that's what my heart looked like too?" yep baby girl, just like it. Prefect and nothing like a paper heart at the store.

This week has been a heart one. We are watching a dear heart hlhs become sicker and sicker as she hangs on while waiting for her little transplant. We love Kylie and her family a ton. Its heart breaking.

We have another little heart friend who we haven't met but I'm friends with her mom one a facebook support group IHH. Their 4 year old had a transplant as a young baby. And Finally got to go on her MAW trip! She wanted to go see Micky and Minnie. And was give the same wish Mariska was granted. Mia ended up sick with a cold that after the flight there became worst. Her mom took her to the local hospital while the dad stayed back at give kids. She was in rejection down to 40%. How can something like this happen to a sweet cleared healthy for this trip?! Mia had a cath that night and things went wrong.. she ended up on ECMO, but the lack of oxygen to her brian had done to much damage.. little Mia pass away yesterday.  Our prayers are with her family in this unbelievably heart time.

Sam and I have been shaken to the core! What happened to Mia could so easily happen to Mariska. Its a very humbling thought. Life is so fragile. It reminded us we need to enjoy every day we are blessed and not to take things for granted. Our hearts are with them and they like us know Families can be together forever, and they will be with their sweet Mia again some day.

I also have a few photos!

Monday, October 1, 2012

Our dear little heart Friend Kylie

Meet Kylie

                   This is our full of life and spunk dearest heart friend Kylie. She is a little younger then Mariska and was born with the same heart defect as Mariska. Kylie has pretty much followed everything Mariska has happen. I look forward to the day when She has her new heart and Kylie and Mariska can have a play date out side the hospital again.

Kylie was placed on the heart transplant waiting list on Monday April 2nd 2012.  Kylie has been admitted to the hospital for 102 days!. She's there while she waits for a new heart. She was able to wait at home for a few months before needing to be on IV medications to help the work load her hard has to endure.   Please pray for Kylie Bug. Her family could use the support and prayers.

Kylie's famous, see her news clip.
Kylie's blog most updates are now on her FB page.
If your on Facebook you can follow her page. Kylie's Lub-A-Dub!/KyliesLubADub

Prayers for little Matthew.

Our sweet little buddy Matthew received a very

special and miraculous gift on the 26th of September.....

the gift of a new heart!

This is actually Matthew's second heart transplant,because his first heart was attacked by coronary artery disease. Two days ago Matthew received this 2nd donor heart after months of prayers on his behalf and just in time to save his life! He got his first heart just months before Mariska. Matthew was on the list for 239 days and in the hospital waiting for 164 of those days. Just 3 days before he received this special new heart he had a heart attack and became extremely ill. This is just another testament that prayers are answered and miracles do happen (and sometimes with not much time to spare)!! Our family has prayed day and night for Matthew and his family.

Please pray for Matthew as he recovers from his transplant surgery and that his body will accept this special new heart! And please pray for Matthew's donor family as they have thought to give life at a time of their great loss.

Kamiah is 1! and Family update

Time goes so fast. I keep telling my self I need to blog every week but haven't. Maybe once I set my mobile option I will be better.

Mariska is doing great! She is a ball of energy. I love watching my two girls play. Mariska does something silly and Kamiah will laugh and laugh. Their favorite thing to do is place chase in the empty living room. Mariska will yell I'm going to get you Mia. Kamiah Giggles and crawls behind the chair and wait, peeks if she hasn't come to tickle her. Mariska Waits until she peeks to say "I FOUND you!"

Kamiah has gotten 6 teeth in 6 weeks. She has been pretty happy and never drooled much. Now her gummy smiles are fulled with silly giant baby teeth! She has mastered going up and down the stairs. Now we're working on getting her to walk. I'm ok with her doing it on her own, who wants their baby to grow up anyway. hehe.

Mariska is going on her 2nd year of dance/ballet. She loves the new dance studio and teachers. Her class has 5 girls! We didn't sign her up for pre-school since we're doing dance. So we do a little here and there at home. She really likes it the more we get into the homework.

Mokie! is our newest member of the family. We adopted a stray very well trained dog from our local shelter. He's a German short haired pointer, black and white tiny spots with a few large black spots all over. He loves going for walks, doesn't run out of the house when we open the doors and loves his ball. We really like having a dog!

Sam Got a promotion at work. He now makes salary, its a different world not worrying about if you clock in late. He's loving it! Sam works with 8 woman and one other guy his boss. Said the conversations are a lot different.

I'm enjoying being a SAHM. I finally started using some of my pinterst posts and made some cool and pretty bad things. Sam wants me.. ok ok I want to also. Start the little work out called insanity!! I might die but that's ok. Last time he did it I was tired just watching him!

We love having a house, but the push mower not so much, working on replacing that in the spring. We're slowly adding things to the walls. Painting Mariska's room, I will try to post pictures of how its coming long, slowly but it will get there. Sam and I painted around the doors and floor boards in the room. While I picked up the can and started shaking it walking 2 feet to the drop cloth, it slipped 3 inches out of my hands and onto the floor. the lid cracked and out came a good inch of paint all over me, the walls, Kamiahs crib, and the carpet. after much scrubbing felt the carpet would be fine. The next morning while Sam got ready for work I had this feeling something wasn't right. I checked to see if Mariska's was sleeping and she wasn't... opened the door to her soon to be new room and shes in there painting away. Poured some paint into the tray and had 2 brush's. Painted a large patch on every wall. dripping paint on the carpet as she went along. I ended up calling my mom to come and help watch the kids so I could clean it up. oh boy what a job, most of the paint had already set before I got to it. Sometime before selling this house the carpet will be replaced. Good thing it wasn't the new carpet!