Friday, September 16, 2011

Rejection Free!!

Mariska went into the cath lab Monday around 1 she was done and out by 2:10.  She had a hard time going in, they let me stay just until they put the mask on. Poor thing was trying to be brave but was scared out of her mind.     She didn't ever ask for food, water twice but I told her why she couldn't and she seemed ok with the reply. Grandma came with me, we both on the other hand we're starving! haha shes my hero!!   

The Cath lab showed the pressures in her heart are lower then the last two biopsy's shes had. Transplant came to see us when she was in the pacu. Said her BPM numbers we're 33 *around there I believe* in July they we're 140s last time in the 60s. This is just another way the body sometimes shows if its rejecting. They were very pleased with the number.

Her echo looks back to her normal again also.  Since her cath was so late we didn't find out about the biopsy until the next morning. I told the team to call me before 9 so I knew what to do on meds.   Shes not rejecting anymore! C1 D1 50 AMR 0.  Someday I'll under stand what that really means. They said its as perfect as it can be.

Talk about a huge weight taken off our shoulders! Didn't want to think about another month of rejection and a new baby with all the doctor visits. It about broke me to think about it. Prayers really are heard.

No baby news yet. Shes still cookin. Sam texts me once or twice a day asking if shes coming yet. Hes just a teeny tiny bit excited and is having a hard time waiting. My due date is the 22nd. I'm 39 weeks.  I keep thinking she'll come on Sunday, but only time will see.  My doctor asked how long I wanted to go and when I want to be induced. Told her lets see what next week brings, under 41 weeks sounds good to me

Monday, September 12, 2011

Biopsy at 12..

Asking for prayers for Mariska today. She goes into the cath lab for another biopsy. We're praying we finally have a handle on her rejection this time.   She is nothing but energy still. =) Its all fine and dandy but its wearing us out!  I started to call her the energizer bunnys' charging pad. Oh to have her energy. 

I'm 38 weeks pregnant  and due in 10 days. YAY for baby sisters. So want her to not be in rejection, I miss my non marshmallow little girly. She is very excited to be a big sister. She'll run up to my belly kiss her sister smile and run back and play.  Mariska is one of the money caring people I have ever met.

We went camping the first week of September at downata hot springs in Idaho. They have a huge volleyball sand pit all the kids from the camp ground go and play in. She noticed some of the kids didn't have toys, so she grabbed all of hers walked over to each kid in the 3 groups and let them use one of hers. Then she would walk around making sure everyone was happy and had a toy. Even telling the others who we're throwing sand at the other little kids to stop and play nice. This kid was a born leader. Shes 3 remind ya and everyone listens to her. The 10 year olds just smile look at their moms like am I really following a little kid?    She also since being on steroids is super gassy! We laugh about it, but its shocking she can give her uncles a run for their money hahaha at least hers don't stink.   We love her chipmunk laugh and her never ending smiles.

Oh and lets not forget shes put on nearly 8lbs over the summer. Amazing when we have fought for every sinkin ounce all of her life. Atleast some of it will go away.

We are praying for her little Heart friend Kylie. Shes had her fontan at the start of the summer and now needs a new heart. Her family could use the prayers and comfort.