Monday, April 30, 2012

All the little things...

Why does my heart still get sick when ever I see PCMC on my caller ID?! I hold my breath put on a smile and take the call. I know the day I dont force my self to be brave they will have icky news.

Mariska's Prograf levels are once again still not stable! They are a little to low *they like it to be with in a range, to hign will damage other organs. To low she can go into rejection* for this far out *less then 2 years* We're going from .85ml to 9.3mls. Then they want a level check with in 10 days. 

I layed down with her today, she cuddled up close gave me a hug and said nothing bad will ever happen as long as your with me mommy. Its the sweet things in life that make it better.  I guess being told not to go out the revolving doors by her self at pcmc really did scare her a little.   I so love this little girl and all her spunk!

Thank you Make-A-Wish!

I so failed to post we're going to Disney World!! Well we're back now. =D  We-had-a-BLAST. We stayed at Give Kids The World. Who gave us tickets to all the major parks.   I'll do a more detailed post about each day, Just wanted to get on here and say we're home!

Mariska's favorite thing on the trip was when Snow White give her a HUGE kiss on the forehead. It was so good to see her so happy and to hear so many giggles.   Thank you Make-A-Wish for giving us the chance to do something amazing!