Talking to Her Dad on the Computer

Mariska was awake thought we would share. We're talked to Sam together. Mariska is doing well. Some days I think she doesn't need her feeding tube anymore, but others I'm grateful we she has it still, like when shes too exhausted to eat but starving.
Her hair is long as ever in the back starting to grow more in the front, when it grows a little more we'll have to get her pictures taken. I wanted the tubes to be off of her face but that's just part of our little girl for now, we'll have to wait and see.
We have had bad moments and good ones. One hard time for me was when I didn't flush out her feeding tube which ended up clogging. I tried for almost 3hours trying to get it to clean out all while crying and thinking I broke her I broke her. I called my mom had her come over, I knew if I didn't get it unclogged I would have to pull it out and put a new one in. This is not something I was looking forward to. I called the home nurse she told me what I didn't want to hear if I couldn't get it cleaned out I would have to replace the tube. oh the joy. Sticking something down someones nose isn't fun. When my mom came over one of the ward members come bringing dinner, I was so nice not to have to find something to make. Thank you to all that brought dinner for us! Her husband is an RN, so she had him come over and help me with the tube. I Tired the first time but didn't get it in, I had him give it a shot success! we taped in place and I no longer broke her. :)
That night is when it truly hit me that she was home and mine. Our little miracle!
Thank you for all your thoughts, prayers and support.
Love Melynda and Sam