Mariska had another clinic visit today. We always start with labs..
She's having some nice lab pulls lately. Makes us super duper excited! No IV team in months! This is kind of a huge deal. :D normally beg for finger pokes to avoid "someone in training" digging around. Yuck I kindly tell them mom doesn't do well with needles... lol.
After labs we sneak out for breakfast in the "old" building. Donuts, blueberry pancakes with buttermilk syrup. Yes please. I settle for a stolen bite. ;) after we waste to much time we race back for echo and the check up.
Mariska is gaining weight... waaaat? After a year of heading down to the redline.. like nutritionist asking for a food log to see if she really eats... arg. She normally had a bathroom trip in an hour after eating. Her body just wouldn't work right. All her tests looked normal. Guess having a colonoscopy did the trick and reset her system? a long with ton of prayers :) she's around 48lbs. Kind of blows my mind. 30 percentile for her age. They want her to keep gaining saying transplant people are never over weight.... yeah.. just plan to keep doing what I've never changed doing. Ha!
Her echo looked great. The new doc is happy with how she sounds and everything looked. she doesn't have to go back until July for her cath.
Cold sores are lame. She had her first real outbreak this month. They gave her some meds for it... if I remember right it's the same anti viral she has while on the grocery sack of rejection meds... last time it was liquid. I forgot it's name since we called it liquid gold. 45 days worth was around 4,000 a bottle... yikes!
Side note she's being dropped from her NoQuestionsAskedMedicaid at the end of the month. I've stressed over it for the last few months. It's been a huge blessing and stress relief to have. Sam got a few raises and a nice bonus last year tipping her out of the range by a few thousand. Bitter sweet feeling. I know our Father in heaven is there for us and I know there are other options for help.
If I can figure this out from my phone I'll post a few photos. The girls are growing up so fast!
Mariska is reading a head of her grade. Her favorite thing about school is recess. Favorite movie is frozen. Loves the color blue. Likes to sit in the heater vents in the morning. Only likes cold blankets at night. Likes watching play duh or toy videos on youtube. she is also learning to play the violin.