Kamiah is 1! and Family update

Time goes so fast. I keep telling my self I need to blog every week but haven't. Maybe once I set my mobile option I will be better.


Mariska is doing great! She is a ball of energy. I love watching my two girls play. Mariska does something silly and Kamiah will laugh and laugh. Their favorite thing to do is place chase in the empty living room. Mariska will yell I'm going to get you Mia. Kamiah Giggles and crawls behind the chair and wait, peeks if she hasn't come to tickle her. Mariska Waits until she peeks to say "I FOUND you!"

Kamiah has gotten 6 teeth in 6 weeks. She has been pretty happy and never drooled much. Now her gummy smiles are fulled with silly giant baby teeth! She has mastered going up and down the stairs. Now we're working on getting her to walk. I'm ok with her doing it on her own, who wants their baby to grow up anyway. hehe.

Mariska is going on her 2nd year of dance/ballet. She loves the new dance studio and teachers. Her class has 5 girls! We didn't sign her up for pre-school since we're doing dance. So we do a little here and there at home. She really likes it the more we get into the homework.

Mokie! is our newest member of the family. We adopted a stray very well trained dog from our local shelter. He's a German short haired pointer, black and white tiny spots with a few large black spots all over. He loves going for walks, doesn't run out of the house when we open the doors and loves his ball. We really like having a dog!

Sam Got a promotion at work. He now makes salary, its a different world not worrying about if you clock in late. He's loving it! Sam works with 8 woman and one other guy his boss. Said the conversations are a lot different.

I'm enjoying being a SAHM. I finally started using some of my pinterst posts and made some cool and pretty bad things. Sam wants me.. ok ok I want to also. Start the little work out called insanity!! I might die but that's ok. Last time he did it I was tired just watching him!

We love having a house, but the push mower not so much, working on replacing that in the spring. We're slowly adding things to the walls. Painting Mariska's room, I will try to post pictures of how its coming long, slowly but it will get there. Sam and I painted around the doors and floor boards in the room. While I picked up the can and started shaking it walking 2 feet to the drop cloth, it slipped 3 inches out of my hands and onto the floor. the lid cracked and out came a good inch of paint all over me, the walls, Kamiahs crib, and the carpet. after much scrubbing felt the carpet would be fine. The next morning while Sam got ready for work I had this feeling something wasn't right. I checked to see if Mariska's was sleeping and she wasn't... opened the door to her soon to be new room and shes in there painting away. Poured some paint into the tray and had 2 brush's. Painted a large patch on every wall. dripping paint on the carpet as she went along. I ended up calling my mom to come and help watch the kids so I could clean it up. oh boy what a job, most of the paint had already set before I got to it. Sometime before selling this house the carpet will be replaced. Good thing it wasn't the new carpet!

Happy 2nd Heart Birthday!

I have a hard time putting into words how I feel, I'm over ran with emotions as I think about Mariska's sweet little donor and their family. We are so grateful to have been blessed with two years with Mariska's better quality of life she's had with her angel heart.

Heres an update. Mariska finished her first full year in ballet! She was so cute on the stage she had a smile from ear to ear. Shes not in tumbling and LOVEing this too. We're working on cartwheels. by we I mean she, haha. She got to be in the Hooper Parade and had fun throwing candy to everyone. Right after we left to go camping, She had so much fun, campfires with a few cousins, swimming in the lake, boat and tube rides! And sleeping in Grandma/Pa B's camper. Love the smell of Pine trees. Its nice to share some of my favorite childhood memories with my kids.

Kamiah is now crawling, a little slow but shes doing it! Now she can run away from Mariska when she comes to love her way to hard. Mariska loves her life sized giggling doll of a sister!

Sam got a promotion at work! YAY. So far he's liking his new job, but its a lot happening while going to school and working both full time.


Mariska had her annual heart biopsy on Monday. She checked in at 6am. They look her into the cath lab at around 7:45am. Sam, Kamiah and I had a nice breakfast at the hospital. walked around a little, about an hour and a half later she was done. All her pressures and arteries Look prefect!! Such a blessing, after 6 hours of her on bedrest for recovery we all went down had a chest x-ray, echo ECG then met with Dr E. Phew just writing it makes me tired!

Her Biopsy came back Clean a beautiful ZERO 0 rejection!!!!  I'd started having nightmares a few weeks ago when the dates we're changed about having to move back into the hospital and how much harder it would be to have Kamiah and living there again. =) We dont go back for 3 months. But we're still there once a month to pick up meds. :o\

Happy Mothers Day!!

I cant but help to think of Mariska's heart donors family. I want to wish her a Happy Mothers Day. We will never forget her little one or their act of kindness that has let us have extra time to enjoy Mariska on this earth. Even if we never get a chance to learn anything about them, they are always in our hearts and prayers.


Thinking of your little angle. <3

All the little things...

Why does my heart still get sick when ever I see PCMC on my caller ID?! I hold my breath put on a smile and take the call. I know the day I dont force my self to be brave they will have icky news.

Mariska's Prograf levels are once again still not stable! They are a little to low *they like it to be with in a range, to hign will damage other organs. To low she can go into rejection* for this far out *less then 2 years* We're going from .85ml to 9.3mls. Then they want a level check with in 10 days. 

I layed down with her today, she cuddled up close gave me a hug and said nothing bad will ever happen as long as your with me mommy. Its the sweet things in life that make it better.  I guess being told not to go out the revolving doors by her self at pcmc really did scare her a little.   I so love this little girl and all her spunk!

Thank you Make-A-Wish!

I so failed to post we're going to Disney World!! Well we're back now. =D  We-had-a-BLAST. We stayed at Give Kids The World. Who gave us tickets to all the major parks.   I'll do a more detailed post about each day, Just wanted to get on here and say we're home!

Mariska's favorite thing on the trip was when Snow White give her a HUGE kiss on the forehead. It was so good to see her so happy and to hear so many giggles.   Thank you Make-A-Wish for giving us the chance to do something amazing!

Icky bug for all the girls/ clinic visit.

Mariska had picked something up at dance the week before we moved. Landing her and my self feeling pretty sick. Made packing/ moving and being a mom not that awesome.

We both finally got better. Then she picked up something a little different leaving us with a runny noses for 2 weeks and a cough thats going on 3! Kamiah ended up getting it too but lucky hers wasnt nearly as bad. Hard to teach a 4 year old not to cough on her sister and she cant touch her if shes coughed on her hands unil she washes them. With Mariska always in her face trying to make her laugh I was shocked we kept it from her for the first 2 weeks.

Shocking how much faster Kamiah recovers from being sick then Mariska. Mariska still has a little cough. *sigh if only the sick kids didnt go to dance and church* 


Mariska had a doctor visit almost 2 weeks ago... I didnt like the news and finally had to much going on. Dr M thought her tricuspid valve was leaking a hair more. Dr. T. didnt think it was. I'm praying it was just her cold that was playing tricks on us....*leaking is normaly the first sigh of rejection* So Dr. M ordered an ECG to make sure. Dont remember what it said but must not have been to bad, since We got chatting.  After we left Transplant team called to tell me her prograf level which is finally in a nice place. yay! And that if we wanted we could come back in 4 weeks and not 2. I keep forgetting to move it back so we're just going to go down on thursday. Kind of want a peace of mind on whats happening.

Since we just booked the plane ride to Orlando the day before clinc with our track record its only fitting something like this happens. ha! it always does. I thought we we're safe doing her trip so early and not waiting for Christmas.

Pray for her on thurday that the news is good and nothing to worry about.