I think.. Not

Mariska's team came by. They talked about sending he home and having us call Thursday with a check in.    Also to stop cellcept.

That changed when she got sick after they got here. She can't say in RTU (rapid treatment unit ) longer then 23 hours. They asked me what I think.   Since she's still in a lot of pain and cant keep anything in. I feel shes better off here to stay hydrated.   I had also planned to stay until Wednesday. They laughed. Looks like we earned a room on the floor.   Just waiting for a few discharges.  

Mariska had a tricky blood draw but finally got it working. She was doing ok this morning.   About 30 mins after her meds and the anti nausea she went really white for about am hour until she got sick again. Blah. She needs to feel better. She has been so sick for 2weeks tomorrow.

Thanks for the prayers. Its helped us deal with life here and is keeping her brave.

Still waiting..

Dr. E came in this morning after we had Mariska's x-ray and her ECHO done. Said the ECHO still looks good, And theres still no change with her pneumatosis.

The GI doctors also came in and talked to me. Said there has still been no change, We're going to keep her NPO for a few more days. 10-14 days. We're going to stop doing daily x-rays, so she doesn't get a ton of radiation.
At the 10th day we'll do an xray and again at 14. If its still there no change the GI docs will talk to the infectious diseases center and go from there.
 
Not the news we want to hear. Keep her in your prayers so she can heal and we can go back home.
 
Yesterday we changed Mariska's PICC line. Its been leaking and kinking for a while. I got to watch them shoot dye into her and watch the screen. Pretty cool. Weirded me out when her x-ray head moved. LOL didnt think it would be a moving x-ray. Guess I should have learned a bit more before going into the room.
Her Vain was to small for the cath. It would flush just fine but when you go to draw it collapses the vain plugging the cath.
Glad she has a new one with two ports makes giving meds so much nicer with out all the beeping if she bends her arm.
 
Mariska is picking up more energy every day. Wanting to walk a little more. She was pretty happy after she came back from sedation. I walked into the room shes joking and teasing the nurse, Nice to see her more like her old self, the drug must have taken the edge off.  Or maybe she just needed something for pain. Shes been off anything for pain for almost a week now. =)