Echo looks good. Day 4.

Today has been a slower one. The transplant team has clinics on Thursdays so they are super busy.  Mariska's Progaph is still low!! Shes getting .6ml and came in at .44mls   That's a huge increase. Shes getting .7 tonight with labs on Sat and clinic on Tuesday and more labs. Her level was 6.4. Still below where they want us 8-10. Next year she'll have the target of 5-8 but thats two years post transplant. Sill kid. We are all waiting for her levels to jump sky high, but nothin. They keep asking if we filled her meds here, if we get her labs done here. Nothing has really changed other the she got sick a few weeks back.  With a double ear infection. But no big changes.

Shes so done and wants to go home. As do Sam and I. Its hard being in the hospital never being left alone, becomes bothersome. Plan is to be discharged here in a few hours, hoping her meds will be ready for us when its time.

We had her echo just after lunch, They came to say it looks better. Wahoo!!  When her body rejected her heart, which we think since her prograph level was so low, it attacks the heart valves. Her tricuspid went from mild to moderate.

We're looking at being on steroids for a month, with a fast taper off from them. That's what we're praying happens.  Mariska has fallen in love with the place called Lagoon. She calls it her adventure rides. Hoping she gets to go a few more times before the summer is over. Who would have thought the kid who is scared at the play ground loves theme park rides.  She is very excited about her little sister who is coming. Only 9 more weeks! We're super excited.

Thanks for all the prayers!

What a fun day...

We took two sober no-smile

Two smiling. We printed the 2nd one in sepia tone.
and one ummm we silly one.. haha

Sam was given discount tickets to Lagoon today's ago for today, so we decided to pay the money and have some fun. We bought Misky and my mom (she was our babysitter most of the time) to join us. I talked Sam into having pictures done. The three of us got to dress up as "Out laws". We got awesome promo deal where you buy one 8x10 and you get the copy rights and the digital prints on a CD. How cool is that! I was excited cause now I get to share our fun.


When we were in line to have our pictures taken, Mariska had all of the workers stopping to see her radiant happy as can be smiling face. Oh and she loved it, the more they smiled at her the more she would smile back. Its sometimes a little embarrassing the amount of people she can attract. haha. We're very grateful we have a super happy smiling baby girl. We couldn't be happier!


Mariska LOVED Lagoon. We were not surprise as she loves anywhere that has lights noise and smiling people. :) She was soo good, only cried for food and a diaper change, (nothing out of her normal) I think she was even better then normal, she hates to be left alone so she always had someone talking and playing with her - she must have thought it was wonderful. She only took less then an hour nap the whole day, so not like her.





We took some pictures but they didn't come out so well, I'll post them later. When we were in line to go into the park you can see the White roller coaster, she was looking at it with a little fear/excitement/nerves look on her face. Like your not going to make ME ride that are you??? It was priceless. She got really excited over the "Rocket" We went and had her stand in the forever long line with us. I was teasing her that I was going to take her on it too. I think part of her wanted to go. haha. This was at 10:30pm. After that ride we thought it was time to go. She finally fell asleep around 10:35pm. What a long fun day for her and us.





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