Saturday, July 24, 2010

First night in he CSU

OY! Forgot you dont really sleep on the 3rd floor, the bed is just for looks. Last night was just stat checks fixing the pluse ox so it reads right. Giving her meds iv meds then flushing the line. Had dreams about the beeps around the room. Poor misky didnt sleep so well either. About every hour there was something going on, like having a new baby again! Misky had chest x-rays this morning, then back to sleep for a while, then meds, Nurse change, IV team for blood draws and a new IV. Dr. Tanee (sp?) came to check on her.

After a few more hours, she got her Chest tube out! the one thats as big as my finger. Also took out the pacer wires. =) 

Dr. T said the donor heart tested positive for CMV, So we might be here a few days longer then she'd need. To make sure she doesnt get it. Just something tokeep a look out on.

Her chest x-rays looked good. And now shes having an echo done to check on the fluid. She'll have a heart cath sometime next week for a biopsy to check for rejection. Keep your fingers crossed when that comes and pray or 0 rejection.

Misky heard a dog tag jingle and has been in a happy mood for a few hours now, =) really kicked in once the chest tube was out. Shes giggling, eating donuts, playing with toys and coloring. Nice to have a day where shes not a total grump. yay for smiles!

Fun having surpised medical staff saying she got her heart fast. =) Thanks for all the love and prayers.

Friday, July 23, 2010

We got a smile :)

We were sent upstairs to the 3rd floor around 2:30 Yeah up to room 3079. At first mariska seemed a little scared being in a new place but she soon warmed up once the nurses left and we got the First Smile since she has had her new heart. She went back to her old self and wanted to read books and paint her fingernails and talk like she used to.. Yippy.

Although she is happy as soon any nurse or doctor comes in she immediatly goes quiet and gets scared, (For Good Reason). But overall she is doing really well. Earlier in the day we both held her for about 1 hour in a half and it seemed to perk her up a little. Dr Kaza said that she still has fluid around her heart but isnt really worried about it sense her old heart was so big it was just a way the body is filling in the excess space.

Thanks for all your continued support and prayers it helps so much.

Baby steps.

Dr. Kaza comes around a few times a day. Kind of wonder when he sleeps. ;) He wants Misky to get up and out of bed 3 times a day. Last night was the first time she went for a wagon ride with the new heart, ha ha I know wait for it, I'll say that one a lot more. We had her walk from her bed to the door.. well the word for what we got her to do might not be called walking but keeping stiff legs and being pushed. Silly girl.

Today She got two thats 2! chest tubes out. WAHOO. Still has fluid behind the heart, Dr. K doesnt think that tube will really get it all but we are hopefull. Took her out for another ride. The cleaning guy came so we stayed out for a few more laps. Think it did her a lot of good.

She got both of the IV's out but got a new one in her other hand. at least she has the one off her ankle. Might hurt to bump walking.

SO the word Floor was said a few times today!! Waa really? moving to the step down unit??? not even tricked with maybe tomorrow? =)  They have to get the discharge papers, so maybe around 1, and a jokingly in 12 hours. Aw thats better sounds more like it.  **Edit We're waiting for someone up stairs to go home so we can move up**

Mariska isnt such a grumpy goone. She ate a little breakfast, which is a lot more then we could say yesterday. Speaking of yesterday. Told my mom if she wants to see her she has to bring a cupcake to get in, she asks how come, cause misky and I want one. Misky enjoyed a few blobs of the lemon frosting I enjoyed the rest. =) thats the first thing she'd wanted to eat all day. Thought it might hit the spot.

Found out a few days ago we have family here in the CICU. Crazy huh! Turns out Sams grandma's brothers granddaughter has a baby here also. I stop by now and then to visit. Shes got tons of dark hair, and is about 5 months younger then Misky.

Thanks for the letters. =) Thoughts and prayers. <3  We had visitors last night just when I thought there'd be none. so many in fact the transplant team called Sam to make sure everyone wore masks and washed their hands with hot soapy water just before entering the room. Feel loved. Those of you that wanna come just make sure your not sick or have been around anyone who has. Just a small cold could kill her. Not something I'd take lightly mind you. But dont let that stop ya if your well and want to visit. =)

Hugs

Thursday, July 22, 2010

Discomfort

Hmm Posting the same things over and over are just getting boring. :P

 Now for an update. They took our her AR line *artery line in her wrist* YAY!! This morning during shift change. Is down to just two IVs. on her in ankle and the other on her left hand. Pacer wires, for just in case, oxygen tube, Three chest tubes and some band aids.

 Misky is still a bit of a grumpy monster. Ate a breakfast drink this morning, For lunch she had a popcial yum yum. Oh and 2  or 3 cheetos. She got mad when I tried making her eat a chicken nugget. *sigh* She'll come around and want to eat again. Soon I hope.

Her Heart is working wonderfully. But she still has a lot of fluid around her heart (guess that should be normal givin all the new space, things need to get moved around in there) So they are leaving the chest tubes in until tomorrow.. yeah I know the word tomorrow again... this is tomorrows-tomorrow. Guess not the right one. hope tomorrow will be the day they come out. She had another ECHO today. =) Got to see what a 4 chamber heart looks like. Yeah it was pretty dang exciting. The tech said she'd give me a copy of her new heart and old heart on a CD. Super excited. Will be neat to see them side by side.   She still has a lot of fluid in there but not as much as yesterday. =) they bumped up her lasix *just a diuretics) Hopefully that will dry her up so the chest tubes can come out tomorrow. Keep her in your prayers.

Sam got to hold her this afternoon! So jealous. My turn will come I'm sure. Shes having a hard time coming off of morphine and over to just Tylenol. Tylenol doesnt do more then take the edge, and morphine puts her to sleep drops her heart rate makes her ich, but takes the pain. soon we'll find the balance. oh shes away time to hold her =)!!

Wednesday, July 21, 2010

AR lines are outta hear!

Mariska is doing well. Kind of a why did you do this to me grump. =) Shes looking more pink every where, not just a pink but she glows! Her skin looks so beautiful.

Dr. Kaza came by when the Nurse practitioner didnt want to pull her AR lines to hard. Pulled them right out. He stripped her chest tube.  *Helped clean the tube and make a vacuum* enough blood came out so they are going to leave them in until tomorrow.

Her ECHO this morning looked good all but some fluild behind her heart. Which is another reason the chest tubes are staying in.

Today is Sam's birthday! Happy Birthday babe we love you. <3 <3 <3

When we came this morning she was asking for us. =( and was sad, Poor dear. In a few days I might need some one to keep her company so We can leave to eat and what not. Just no sickies.

Tuesday, July 20, 2010

Breaths of air.

Talked of today being the day she comes off the ventilator. My sister and family came down to the hospital today, Visited then went and ate. Almost took her off when we planned to leave but decided she was to a sleep. The nurse took a break then came back while we we're gone. Forgot to give us a call when it happened must have missed passing it on. oh well. When we got back she'd had the breathing tube out for 45mins. They pulled it at 2pm. Shes been doing great. Seems a lot more comfortable now that its gone. YAY.

Shes working on getting the pain meds and sedation meds gone slowly. Thinking the chest tubes will go sometime tomorrow.

Mariska can start to drink clear liquids later this evening. After shes hit the 6 hour mark of breathing on her own.
Things are moving right along.
Loves.