Updates From the Start

Update # 1

7:00 p.m. 2 1/2 hours after starting. The nurse just called and said they just finished put the all the lines in and sedating her and they just started the incision. They are not sure how long it will be from here yet.. we'll keep it updated

The Call!

The madness has slowed down enough for me to get a post out.We got the call from transplant that they have a perfect matched heart for misky!! <3 Amazing, So grateful to the donors family what a wonderful and painful thing for a parent to do. We'll always be grateful for today for this news.

 The call came at 8:30 we hurried got up, ready and out the door. Checked into the PICU at Primary Childrens in Salt Lake. Waited for a bed. talked to the attending physicians, met her nurse Laura. Talked to the nurse she had a few weeks ago she was surprised to see us back so soon. =) The transplant team was also surprised she was getting a heart so fast. Status 2 normal wait is 150-180 days. Shes only been listed for 35days. Truly a miracle. We have been blessed. Thanks to all the prayers, fastings, blessings, and her name being in the Temples.

When we got here they let her eat something since she wasnt going in until 4ish. FruitLoops, she ate all of them. Wonder if she'll blame this all on the food and never eat them again. lol

Late both of Sams and my parents showed up. Gave her a blessing of healing. After watching a few movies she feel asleep and took a nice nap. woke up when Doctor Kasa came when she had just woke up and want to happy. He went over all the same things as last time. Talked to the anesthesiologist Matt about all the risks before Doctor Kasa came in. Took her chest x-ray then Matt walked Sam, Misky Tyson my brother and I down to the OR. Gave her some versaid (sp?) Which kicked in pretty fast. He was looking at her trying to get a smile when she busted out laughing with a huge ol' grin. Then went back to being grumpy while they walked away. At 4:37

Now we're sitting in the Same Day surgery waiting room ALL to our selfs. With Sams Parents, My parents, Tyson, my Grandparents Browings, and soon to be my dads brother and wife. My sister Aleatha, Steve, and Jessi. My sister Tanya, her husband and two kids are driving in the morning for Washington. Gonna be a long night. Surgery will be anywhere from 6-10 hours.
Keep the prayers coming. I'll update as the news comes every hour.

Missed the bullet?

hmm lot to upday. Mostly fun things and the places we have been.. I'll save that for another time. Today we had a check-up at PCMC transplant team. They wanted to do another echo and some labs.

Misky was really good for her ECHO. Did ok on the first blood draw.. the 2nd one she wasnt happy she had to do it again! She came home with One bear and 11 stickers, and 5 sugar free suckers. Pays to be happy.


Echo looks the same... labs look the same... she hasnt gained any weight since March.. cant be listed as a 1B until she falls under the 10th% for her age. *6 more weeks not not gaining and she will* for now shes still listed as 2.


They *the transplant team* didnt feel good about admitting her today. Theres many new risks of being healthy sitting in a hospital with ill kids. For now she'll be at home.  We'll talk to the on tues day if shes doing well/same then we go in the next week but if something changes then we see them in a week.
 
Feels like we may have missed a bullet but the bomb is about to drop. Oh I pray I'm wrong... So many things to worry about with this new adventure.
 
Shes doing well enough to be a hand full in the hospital but is slowly getting sicker. Have a question for heart families. What do you do about church?? They say not to go and risk betting her sick but we need to be refilled spiritually. What are the options? :S
 
Thanks for keeping up with our slow but wild ride. <3

The call

Got the call/page from the transplant team yesterday around 4pm yesterday. They had a potential donor! a perfect match for her. <3 Sam was just getting home from fishing, Misky and I we're out shopping. This might be a watered down version so forgive me for the mess I'm about to write. ;)

Walked up to the PICU then down to bed 2506 around 5. Hooked Mariska to all the standered monitors. Pulsox, blood pressure, heart leads and an IV. She was super good. Laughed and played with the IV team it was pretty cute. She wasn't such a heart poke being on blood thinners might have helped there.  Talked with most of the picu doctors, then waited for Michelle from transplant to come up and go over the last paper work for us to sign.

Then met with Dr. Kasa *the surgeon* He is such a pleasant person to talk with. He looked at her ECHO and said it gave him chest pain looking at it. ( she is very sick in the inside) He walked by the room, had Sam get me and told the nurse. Are you sure thats the right kid?  Shocked at how well she looks and is very active. Not what he thought he'd see that based on her echo. Said shes the best Hypoplastic he has EVER seen! and ever has pink lips. =)  That is what prayers from all over the world can do. Shes a miracle!
He went over the risks on surgery with us. Said she was 3rd on the list. He got number 2 to back down, they took the bait as he put it. lol. The 1st in line was Standford's little one. Just waiting to see if the size would be ok.   Recovery time looks like 2 weeks in the hospital. (kind of shocking was planning for a month yay!)  Dr. K went over pretty much everything.
My dad wanted to know if we could keep Mariska's old heart ( joked about keeping it over the fireplace or in the meat draw to make my mom crazy. haha love my dad.) He looked at my dad and said "I think you've had to much sun" Think that took the rest of the night to gather that was a no, you dont reallly wanna keep it/ yo crazy! lol at the time it felt like he was just changing the subject. ROFL. He did say how ever he would bring her heart in for us to see!

Around 10 they said the other team is taking the heart. All the doctors said they we're sorry for all the trouble and she didnt get it. Also thought it would be pretty amazing for a lv 2 and only being on the list for less then 3 weeks to get a heart that fast!  Looks like 4th of July will not be viewed form the "house on the hill". We're doing ok with it all. Feels like maybe to ok with it. Wanted to go camping this weekend while we can. =)

Thanks for all the prayers!!  I update more on facebook added a tag. Your more then welcomed to get more of my thoughts there.

Hugs Melynda and Family

Happy News.

Had a check up at PCMC today. The team wanted to check her weight and see hows she's doing over all. Shes still on 1/2 liter of  02. -Which has made a world of a difference. Shes back to her happy bouncy giggly self.  We met with Michelle and Emilee they checked her O2 stats76-80 better then the 69 last week. Checked her blood pressure and then off to the scale.

Shes gained 2 ounces in less then a week. She has been a nonstop eating machine!! Granted most of it has been breads and junk like chicken nuggets, fries, pizza donuts and a few CupCakes. Lets not forget how much everyone spoiled her this week =).  Gave up on veggies this week just wanted her to gain some weight. Looks like it payed off. Now back to eating the green stuff.

They talked to Dr. Everett who was pleased with her numbers. Said they didn't want to admit her today.!! YaY!! Soo happy shes doing well enough to be at home. We'll go back on the 1st of July for her "in a month check-up"

Thanks for all the prayers for our family. <3

A heart momma friend of ours took our family photos this week. Thanks so much Lori!!

Listed Today.

The Heart Transplant Team called. She's on the list =) Status 2.

Thanks for all the prayers <3 <3